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Tuesday, 26 May 2009

Re-referral

Finally managed to get through to someone who could advise us what to do next, being that the clinic has closed down.
I got an email from the nurse at Bart's, who has told me that we can be seen at our local clinic, but will need to be re-refered by our GP.
Went into the surgery after work and spoke to the receptionist, who told me the doctor would call me back the next day. Didn't hold out too much hope here, as I'm getting quite used to being told this and never hearing anything, but to my surprise, he called me back first thing the next day!!! He told me that we would indeed need a re-referal to get back into the system, but he was unsure of exactly how this works. He is going to find out more information about it for us and has booked us an appointment for Saturday to come in and discuss what he has found out and what happens next.
We're feeling a little bit more optimistic now as I feel we are back in the hands of people who are interested in our treatment, at least for the time being!
Hopefully, fingers crossed, this may be the start of something a bit more promising.
After all this time being stalled by the people who are supposed to be helping I really want to get on with it. I know after all this time waiting, another few weeks shouldn't matter, but it really does!

Monday, 18 May 2009

It just gets harder!

This just gets harder by the day.
We have still got no further with anything. After weeks of trying to get through to the clinic to arrange our next appointment for the first scans & samples, I find out that they have closed down. Didn't even bother to let us know. I only found out through an article in the local paper.
We tried to contact one of the other local clinics, but they know nothing about what is happening with all the patients that have been left behind.
I am starting to feel like giving up as we are getting nowhere.
The emotions are getting worse too. I don't know if I'm coming or going half the time. It's amazing that one thing can take over your life so much. Hopefully once we start to get somewhere it might all get a little easier. I'm told that all these feelings are quite normal, but it doesn't feel very normal to me. I just want to feel happy again.